Welcome to
@TickingOutLoud


(Mostly) BY TOURETTERS, FOR TOURETTERS

and those around us. That's everybody!

We're slowly rolling it out,
thank you for your patience!

You may take this survey in the meantime!

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ABOUT TOL

Dedicated to

Tourette Syndrome Education & Advocacy

and the Empowerment & Mainstreaming of Touretters

EVERYWHERE! 


(a.k.a. the 75-second intro blog)


"To empower and mainstream Touretters, everywhere". I'm probably nuts to choose to take this on.

My original concept was for a 5-year mission. Course-corrected to an 8-year mission. No, 11! Later in 2017, a very, very smart man pointed out to me it's likely to be a lifelong mission. I agreed.

Because there's always more to do. More to fix which isn't Tourette Syndrome, or us.

My name is Christine, I have lived with Tourette Syndrome my entire life. But only in the last few years have I begun to embrace it and have a healthy relationship to it. Because like many of you reading this, I felt everything about Tourette Syndrome (and about myself) was wrong.

This is something I learned. Something we've learned.

All of us. From our loved ones all the way to colleagues via all the poor media depictions, many (thankfully not all!) of us have learned early on that Tourette's tics are a bad thing. Many adults I know who live with TS are still in the "Twitch Closet". For fear of being stigmatized, unaccepted.

We didn't learn this from one person. This is what many of us have lived for much of our lives. We've learned this sense of conditional inclusion from everywhere. Family, friends, colleagues, would-be lovers, Time and again.

Because that's the way it's always been.

Let's change that.

Yes, of course you'll find information about Tourette and its co-occurring conditions right here and via carefully selected content/links, but more importantly, you'll read and hear Touretter stories, experiences and (mostly) first-hand perspectives from everywhere. It's important to meet as many different #ActuallyTourettic individuals as possible. 

Because if you've met one of us, you've only met one of us. This is a place where you'll get to know many of us. And some close to us. I'm only one of about 75,000,000. 

And while we share all that, I'll still keep busy behind the scenes having a lot of difficult conversations with a lot of people who may label me difficult, and I'm quite okay with that. Because I've challenged what they think they know. Because I'm claiming what's ours, yet still not our own. 

Yes, I am someone who has pushed, is pushing and will keep pushing for change.

Change is hard.

I'll stop when everything is in its rightful place. Or when I stop ticcin'. Whichever comes first. And I hope to live long and prosper.

Thank you for your time, and welcome!

p.s.: if you have 3 minutes, would you complete this 10-question survey about Tourette's Expressions?

NEWS & UPDATES

Mobirise

Blogs, Vlogs, Media & Guests

Coming Soon!

Mobirise

Awareness/Education Posters

Recent updates!

A growing collection of educational, thoughtful, at times inspirational and always shareable Tourette-focused materials. Awareness, Education and Touretters' Insights

Support Groups

Support/Events/Socials

TOURETTE INFO

What is Tourette Syndrome?


Tourette Syndrome is a neurodevelopmental motor disorder characterized by the presence of both chronic physical and vocal (phonic) tics, with typical onset between the ages of 5 to 8 years old. The Tourette population is 75 to 80% male.

A tic is a sudden, rapid, non-rhythmic and sometimes recurring movement or vocalization.

To be diagnosed with Tourette syndrome, one must experience more than one physical tic and at least one vocal tic for a period of at least one year. Not all symptoms need to express concurrently. Everyone’s tics will change over time, there is no way to know how or what tic will manifest in a month, or in the next minute.

Tourette’s presence in the DSM-5 is only to state that as of May 2013, it no longer belongs in there, as it is not psychiatric, but rather motor.

85% to 90% of people living with Tourette Syndrome will also experience co-occurring conditions, Anxiety, OCD and ADHD being the most common. Also common are Sleep disorders, Executive Dysfunction, Sensory Processing issues, Panic disorders, Dysgraphia, Dyscalculia, Depression and Neurological “Storms”.

Tourette and its co-occurring/comorbid/associated conditions is also known as "Tourette Plus" a.k.a. TS+



Tourette Posters

Awareness, Education & Thoughts on TS

Mobirise

All

All Posters

Mobirise

#Tictionary

Tapping Into My Inner Samuel Johnson

Mobirise

Collaborators

Painters, photographers, writers and more!

Mobirise

#TourettersInsights

Because we need to talk about it differently to think about it differently

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Community

There's a few conversations on my YouTube channel! @TickingOutLoud